• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

MovieDebuts.com

...and Celebrity News!

  • Home
  • Movies
  • Music
  • TV/Internet
  • Celebrities
  • Shows/Events
  • Gaming
  • Sports

With Its Film Fest Postponed by the Pandemic, Rare-Disease Group Starts Its Own Streaming Channel

July 8, 2020 By MovieDebuts

fb-share-icon
Visit Us
Follow Me
Tweet
Share
With Its Film Fest Postponed by the Pandemic, Rare-Disease Group Starts Its Own Streaming Channel
With Its Film Fest Postponed by the Pandemic, Rare-Disease Group Starts Its Own Streaming Channel

Rare Outreach Coalition was forced to postpone its May 18th event in New York City (Disorder: The Rare Disease Film Festival) due to COVID-19. ROC has now launched The Disorder Channel as a new platform to provide another showcase for rare disease films. The channel is available for free on the Roku platform and Amazon Fire TV. It features many previously unseen rare films and original videos. It also includes some films intended for this year’s festival, as well as favorites from prior years.

THE DISORDER channel

While millions are stuck at home, anxious about the future, and hungry for content, the channel provides stories of hope and inspiration. “Once we knew this year’s festival couldn’t happen as planned,” said Daniel DeFabio, co-founder of the festival, “we wanted to get these films out there to as many people as possible.”

The festival’s goal since its 2017 inception has been to unite rare-disease stakeholders in person in order to spur collaborations that lead to cures. This year’s event would have represented over 60 rare diseases, including Cystic Fibrosis, Epidermolysis Bullosa, Duchenne MD, Hemophilia, Menkes Disease, USP7, and Huntington’s Disease.

“It’s great to spread awareness about these diseases,” said festival co-founder Bo Bigelow, “but in the lobby between screenings is where we see these amazing chance meetings–a researcher learning about a clinical trial for another disease that could help her patient, for example.”

The arrival of COVID-19 has made those meetings impossible for now. “It’s unfortunately kind of a perfect storm,” said DeFabio. “Many in our audience each year would be some of the most vulnerable to the coronavirus, since they’re rare-disease patients.” Uncertain when it will be safe again to hold this type of in-person event, he and Bigelow contacted this year’s accepted filmmakers and offered them the chance to add their films to the channel.

The channel also offers a platform for creators to stream new content about rare disease, such as episodes of rare-disease talk shows. For example, Bigelow began creating a video version of his longtime audio podcast, “Stronger Every Day,” about his daughter’s rare disorder.

***Roku is a registered trademark of Roku, Inc. in the U.S. and in other countries. Trade names, trademarks and service marks of other companies appearing in this press release are the property of their respective holders.

Related Posts:

  • Elvis Presley’s Graceland Announces Details for Elvis Week 2021 Ultimate Elvis Tribute Artist Contest and Events
    Elvis Presley’s Graceland Announces Details for Elvis Week 2021 Ultimate Elvis Tribute Artist…
  • NYC’s Jenny Kern Releases New Single “Where Did The Time Go” Today
    NYC’s Jenny Kern Releases New Single “Where Did The Time Go” Today
  • StarBase Announces October Programming
    StarBase Announces October Programming
  • Zoink Games and EA Invite Players to Get Lost in Random in a New, Twisted Journey Driven by Chance, Available Now
    Zoink Games and EA Invite Players to Get Lost in Random in a New, Twisted Journey Driven by Chance,…
  • Vivica A. Fox & Miss Lawrence Set to Host The Vision Community Foundation’s 8th Black Tie Gala on Friday, September 3rd at Historic Biltmore Ballrooms
    Vivica A. Fox & Miss Lawrence Set to Host The Vision Community Foundation’s 8th Black Tie Gala on…

Filed Under: TV/Internet Tagged With: Amazon Fire TV, Audience, Awareness, Coronavirus, Cystic fibrosis, Doctor of Medicine, Epidermolysis bullosa, Film, Film festival, Haemophilia, Huntington's disease, Learning, Menkes disease, New York City, Pandemic, Rare disease, Roku, Streaming, Virus

Amazon Products

Primary Sidebar

Search

Product Specials

Top Ten Popular Articles


Visit us at VegasPublicity.com!

VegasPublicity.com

VegasPublicity.com is your source for news about Las Vegas, the most Exciting City on The Planet! Check us daily for news about Hotels, Casinos, Shows, Events, Bars, Dining, Sports, Local & National events and sightings of your favorite celebrities.

Free Daily News Summary!

10 Most Recent Posts

  • StarBase Announces October ProgrammingStarBase Announces October Programming
  • Zoink Games and EA Invite Players to Get Lost in Random in a New, Twisted Journey Driven by Chance, Available NowZoink Games and EA Invite Players to Get Lost in Random in a New, Twis…
  • Vivica A. Fox & Miss Lawrence Set to Host The Vision Community Foundation’s 8th Black Tie Gala on Friday, September 3rd at Historic Biltmore BallroomsVivica A. Fox & Miss Lawrence Set to Host The Vision Community Fo…
  • NYC’s Jenny Kern Releases New Single “Where Did the Time Go” TodayNYC’s Jenny Kern Releases New Single “Where Did The Time Go” Today
  • Elvis Presley’s Graceland Announces Details for Elvis Week 2021 Ultimate Elvis Tribute Artist Contest and EventsElvis Presley’s Graceland Announces Details for Elvis Week 2021 Ultima…
  • STYX First New Studio Album in Four Years, 'CRASH OF THE CROWN'STYX First New Studio Album in Four Years, ‘CRASH OF THE CROWN&#…
  • Recording Academy Implements Major Changes for 64th Annual GRAMMY AwardsRecording Academy Implements Major Changes for 64th Annual GRAMMY Awar…
  • The first short film produced together by Miyazaki and Kagoshima prefectures showing the rarely seen Koji production and Shochu making process as distillers explain why Shochu is so unique, and why the world's best bartenders love it and accept Shochu as new spirit category.The Hidden Spirit of Kyushu-Shochu-Kagoshima and Miyazaki Prefecture T…
  • 'VP Kamala Harris: Chase the Dream', Now Available‘VP Kamala Harris: Chase the Dream’, Now Available
  • Zane Hubbard is a Filmmaker on the RiseZane Hubbard is a Filmmaker on the Rise

Please follow & like us :)

fb-share-icon
Visit Us
Follow Me
Tweet
Share

Our 100 Latest Articles

Click this link to view the headlines and thumbnails of our Latest 100 Articles

Goldstar Special Offers

Categories

  • Celebrities (128)
  • Gaming (168)
  • Movies (557)
  • Music (559)
  • Shows/Events (353)
  • Sports (146)
  • TV/Internet (410)

MovieDebut.com Archives

Footer

About MovieDebuts.com

MovieDebuts.com is your source for celebrity news around America. Check us daily for news about Movies, TV, Music, Red Carpets, and your favorite celebrities.

What kind of business deals do your favorite celebrities make when they aren’t singing or acting? Which endorsements are they making? We’ll tell you!

MovieDebuts.com is published by PR/Marketing veteran Bryan Eggers.

The contents of this site is Copyright 2019-2020 MovieDebuts.com and/ or the individual photo/article authors.

Please send your press releases, celebrity sightings and photos to MovieDebuts.com@gmail.com

Privacy Policy
Please read our Privacy Policy here

FTC Disclaimer
As an Amazon Associate we earn from qualifying purchases. This website may include other affiliate links and we may be compensated if you make a purchase after clicking one of these links.

Recent Posts

  • StarBase Announces October Programming October 8, 2021
  • Zoink Games and EA Invite Players to Get Lost in Random in a New, Twisted Journey Driven by Chance, Available Now September 13, 2021
  • Vivica A. Fox & Miss Lawrence Set to Host The Vision Community Foundation’s 8th Black Tie Gala on Friday, September 3rd at Historic Biltmore Ballrooms August 24, 2021
  • NYC’s Jenny Kern Releases New Single “Where Did The Time Go” Today August 20, 2021
  • Elvis Presley’s Graceland Announces Details for Elvis Week 2021 Ultimate Elvis Tribute Artist Contest and Events July 3, 2021
  • STYX First New Studio Album in Four Years, ‘CRASH OF THE CROWN’ June 20, 2021
  • Recording Academy Implements Major Changes for 64th Annual GRAMMY Awards May 1, 2021

Search

Popular Tags

Actor (165) Actors (149) Adventure (112) Album (218) Albums (120) Animation (109) Artists (209) Awards (174) Billboard (105) Celebrity (148) Child (108) Comedy (166) Community (142) Concert (175) Culture (112) Dance (111) Design (97) Drama (136) Education (112) Entertainment (548) Family (131) Feature film (98) Film (378) Film festival (132) Films (213) Friends (102) Guitar (125) Health (112) Hollywood (134) Los Angeles (125) Love (103) movie (358) Music (669) Musicians (273) Music video (150) Performance (177) Songs (242) Songwriter (111) Sports (135) Streaming (138) Technology (130) Television (297) Trailer (153) Video (234) Women (98)

Copyright Bryan Eggers © 2022 · Log in

This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Cookie settingsACCEPT
Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Non-necessary
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
SAVE & ACCEPT